Not So Rare Podcast
It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Podcasting since 2022 • 49 episodes
Not So Rare Podcast
Latest Episodes
Rare Disease and Family Planning - Part 4
This week Taylor and Liz revisit their Rare Disease and Family Planning mini-series. In this episode, Taylor shares some exciting updates on her journey. We also revisit Liz's story.
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Season 1
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Episode 47
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32:28
Life Update from Taylor & Liz
Taylor and Liz use this week's episode to provide an update on what is new with their lives over the last several months.
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Season 1
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Episode 45
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31:16
Advocacy
In this week's episode, Taylor and Liz discuss their own path in identifying ways to be advocates for their Rare Disease. When choosing ways to help your rare disease community, consider identifying advocacy areas that interest you and can have...
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Season 1
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Episode 44
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20:20
THE Not So Rare Mom
You have heard Taylor and Liz's story, this week we are excited to have THE Not So Rare Mom join the podcast. Taylor's mom joins to share her perspective as a Rare Disease Mom while supporting her daughter through her education and life milesto...
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Season 1
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Episode 43
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32:52
Challenges of the Self-Diagnosed
Many rare disease patients struggle with obtaining a diagnosis for their disease. Often this leaves patients trying to research on their own in order to help the process. Taylor and Liz this week discuss the challenges and impacts of patients w...
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Season 1
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Episode 42
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21:28