Not So Rare Podcast
It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Not So Rare Podcast
THE Not So Rare Mom
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Taylor and Liz
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Season 1
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Episode 43
You have heard Taylor and Liz's story, this week we are excited to have THE Not So Rare Mom join the podcast. Taylor's mom joins to share her perspective as a Rare Disease Mom while supporting her daughter through her education and life milestones while also supporting her diagnostic, clinical, and advocacy journeys.
Want to support and connect further with Taylor and Liz?
Follow and connect with us on Facebook and Instagram!
Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support!