Meet Lindsay - Living with CLOVES Artwork

Not So Rare Podcast

It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!

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Not So Rare Podcast

Meet Lindsay - Living with CLOVES

October 09, 2022 • Taylor and Liz • Season 1 • Episode 30

0:00 | 29:00

Taylor and Liz are excited to have Lindsay join the podcast as part of this week's episode. Lindsay is a young adult who shares her experiences both being diagnosed as well as living with CLOVES. CLOVES stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis.

Thank you for sharing your story with our community Lindsay!

Please click here if you are interested in learning more about CLOVES and the CLOVES Syndrome Community.

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