Meet Chris - Creating Rare Disease Connections Artwork

Not So Rare Podcast

It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!

All Episodes

Not So Rare Podcast

Meet Chris - Creating Rare Disease Connections

September 04, 2022 • Taylor and Liz • Season 1 • Episode 26

Taylor and Liz are joined by special guest Chris who shares her journey living with Hypertrophic Olivary Degeneration as well as Sporadic Cerebral Cavernous Malformations. Chris has worked hard to build connections across the patient and medical community to raise awareness and increase research on her disease. If interested in learning more, please refer to https://hodassoc.org/ . Thanks for joining us Chris!

Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!

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