Meet Emily - Creating Roles for the Patient and Family Artwork

Not So Rare Podcast

It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are 'Not so Rare!' Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!

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Not So Rare Podcast

Meet Emily - Creating Roles for the Patient and Family

August 21, 2022 • Taylor and Liz • Season 1 • Episode 24

Taylor and Liz are excited to invite Emily to this week's podcast episode. Emily shares her inspiring story of navigating her daughter's diagnosis and establishing a treatment plan. Throughout her story, it is evident that there are creative roles that the young patient and all members of the family can serve in both treatment and patient advocacy. Thank you for joining us this week Emily!

Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram at the NotSoRarePodcast as well as on Facebook at the NotSoRarePodcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!

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