This week, Taylor and Liz are excited to have Lily join the podcast. Lily is living with VACTERL Association. In this week's episode, Lily discusses more about her disease along with sharing how she has worked to help support her own rare disease community. She also discusses an impactful camping experience that helped her build deeper connections. For more information related to VACTERL Association, please click here. Additionally, for more information related to camping experiences for youth living with bowel and/ or bladder system conditions, please click here.
Want to support and connect further with Taylor and Liz?
Follow and connect with us on Facebook and Instagram!
Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support!
This week, Taylor and Liz are excited to have Lily join the podcast. Lily is living with VACTERL Association. In this week's episode, Lily discusses more about her disease along with sharing how she has worked to help support her own rare disease community. She also discusses an impactful camping experience that helped her build deeper connections. For more information related to VACTERL Association, please click here. Additionally, for more information related to camping experiences for youth living with bowel and/ or bladder system conditions, please click here.
Want to support and connect further with Taylor and Liz?
Follow and connect with us on Facebook and Instagram!
Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Visit our official merchandise store at https://www.bonfire.com/store/not-so-rare-podcast-store/ and show your support!